Friday, June 30, 2006

Fibromyalgia Statistics

FIBROMYALGIA

Fibromyalgia is an often misunderstood, even unrecognized, disorder that causes widespread muscle pain and tenderness which tends to come and go, and move about the body. This common and chronic condition can also be associated with fatigue, sleep disturbances and memory problems.

Fast Facts
Fibromyalgia affects two to four percent of the population, predominantly women.

There are no laboratory or other diagnostic tests for fibromyalgia so it must be diagnosed based on patient symptoms.

What fibromyalgia is

Fibromyalgia is pain and tenderness in the so-called "tender points" are the defining characteristics of fibromyalgia, so medical care providers focus on the features of the pain to distinguish it from other rheumatic disorders.

Fibromyalgia is a clinical syndrome defined by chronic widespread muscular pain, fatigue and tenderness. Many people with fibromyalgia also experience additional symptoms such as fatigue, headaches, irritable bowel syndrome, irritable bladder, cognitive and memory problems (often called “fibro fog”), temporomandibular joint disorder, pelvic pain, restless leg syndrome, sensitivity to noise and temperature, and anxiety and depression. These symptoms can vary in intensity and, like the pain of fibromyalgia, wax and wane over time.

What causes fibromyalgia

No one knows what causes fibromyalgia. However, we do know that people with fibromyalgia may have abnormal levels of Substance P, a chemical that helps transmit and amplify pain signals to and from the brain. For the person with fibromyalgia, it is as though the “volume control” is turned up too high in the brain's pain processing areas. Current studies are underway to examine how the brain and spinal cord (the central nervous system) process pain and the role Substance P plays.

Genetics also appear to play a role leading to a familial tendency to develop fibromyalgia. So does everyday life exposure to physical, emotional, or environmental stressors that may trigger the initiation of fibromyalgia symptoms
Information couresty of www.rheumatology.org.

Prevalance Rate for Fibromyalgia: approx 1 in 73 or 1.36% or 3.7 million people in USA

Broken down by Gender: 0.5% of men and 3.4% of women
The above according to the American College of Rheumatology

According to the National Foundation for Fibromyalgia, as many as 12 million
Americans suffer from FM but remain undiagnosed because of its elusive nature. Fibromyalgia is most common in women between the ages of 20 and 50, although it also affects men, the elderly, and children. Children with FM are often mistakenly diagnosed with growing pains or behavioral problems, and FM is commonly mistaken for chronic fatigue syndrome since the symptoms of the two diseases are so similar.

There are no laboratory or other diagnostic tests for fibromyalgia so it must be diagnosed based on patient symptoms.

Game Called Suck It Up!

Today I feel like hell warmed over. I don't want to go anywhere but things need to be done today and there is nothing I can do about it. I have laundry to do today and I have to go to a laundromat. Not my favorite thing to do especially when I feel like crap. But today I play the game called "Suck It Up!" Its when you feel like crap but don't think about it and push your way through it to do what you need to. I do that quite often.
Well today is just another day in CPland!

Thursday, June 29, 2006

The CPer Look AKA What Pain Can Do To You

I just looked at myself in the bathroom mirror this morning and I look like I have been through hell and back.Feeling Blue I have deep, dark circles under my eyes like I haven't slept for days. I mean I never sleep well at night and I wake up at least 2-3 times a night. But this morning I looked pale and just ill. I feel like just to look "normal" I would have to wear tons of makeup.Disappointed
I guess it is the price you pay for being chronically ill.

Wednesday, June 28, 2006

Great books on Chronic Pain

Over the years I have found some great books and not so great books that have helped me along the way. I just thought I would share some with you.
All info is from Amazon.com but the books can be found at most bookstores and online bookstores.

Fibromyalgia and Chronic Myofascial Pain: A Survival Manual by Devin J. Starlanyl, Mary Ellen Copeland
The Fibromyalgia Relief Book : 213 Ideas for Improving Your Quality of Life by Miryam E. Williamson, Mary Anne Saathoff
A Delicate Balance: Living Successfully with Chronic Illness by Susan M. Wells
You Don't Look Sick: Living Well With Invisible Chronic Illness by Joy H. Selak and Steven S. Overman
The Chronic Illness Experience : Embracing the Imperfect Life by Cheri Register
Fibromyalgia: A Comprehensive Approach What You Can Do About Chronic Pain and Fatigue by Miryam Ehrlich Williamson, David A. Nye (Foreword)
The Fibromyalgia Advocate by Devin Starlanyl
Fibromyalgia: A Leading Expert's Guide to Understanding and Getting Relief from the Pain That Won't Go Away by Don L. Goldenberg (He is my FM specialist so I am a little biased about this one)
I have read many others, but these are the cream of the crop. Enjoy!

The Morning from Hell after the Night from Hell

This is an FMer. This is a FMer after a bad night of sleep due to a rude and obnoxious 20 year old neighbor girl who decides that her apartment is actually a dorm roomPulling My Hair Out. Any questions????
I am NOT a happy camper this morning. I am also hurting and very tired. As for the Arthritis Symposium I was going to attend today, that is going to be a no show! My head aches, my body hurts and I am very tired. Driving long distances like this could cause a major accident. The best thing I can think of doing is staying close by and NOT travelling the highways. I do have to go and pick up some medication later in the day, but that is IT for my adventures out today. I will be spending most of my time horizontal on the couch.
I hope the day will go smoothly.

Chronic Pain, Insomnia and the Neighbor from Hell!

Well I am up at 1:30 in the morning because of my lovely next door neighbor.(Note the sarcasm here!)Perturbed Now I have sleep issues on my own but combine them with a neighbor that loves to blast music, slam things against my bedroom wall and basically be loud in the middle of the night, that spells a bad night for me. My husband, the lucky dog, sleeps through it all.
Regardless of all the medication that I take to sleep, this person still wakes me up at about 1 every night. Oh trust me I have tried complaining to the landlord, calling the cops, you name it. Nothing seems to work for long. Combine it with she has been served eviction papers and a whole new kettle of fish comes into play!
Angry? Damn right I am angry! What right does she have to do this? Doesn't she understand people sleep at this hour??? I guess not.
Now I was supposed to go to an Arthritis Symposium but now that may not happen. I have to drive 45 minutes to get there and on a good day that is difficult but add in a night like tonight and I will be a mess. Well, I just took some meds that I should normally take an hour from now but I figure what they hell. I need to sleep. On top of it all, my stomach is doing flip-flops because of my agitation.
With all that I have going on in my life, why is it my luck I get stuck with the neighbor from hell????She-devil

Tuesday, June 27, 2006

The life of a Fibroflare

Well, it seems I am in the middle of what is called a Fibroflare. For those who don't know it is a flare of pain due to the Fibromyalgia (FM for short). Right now my trapezeus muscle is squeezing nerves that go into my left arm and making my arm numb. Painfully numb. It is to the point where it keeps me awake and I cannot get comfortable enough to rest. Unfortunately there is not much I can do about it. The pain doc is only in the office I go to on Wednesdays and the med I am on should be enough to help....but they aren't. Sigh.....
Well I am having a hard time typing so i will sign off for now. I hope this lets up soon...this is day 4.

Monday, June 26, 2006

Rough Weekend

Well this weekend was rather rough for me physically. I was in bed for most of it in pain. On Wednesday, my pain doc pressed on an area that I will be getting facet injections next week. This caused my nerve endings to light up like a Christmas tree and I have been in pain ever since. Between that and another bad reaction to my Trigger Point Injections (TPIs from here on) I was and still am a mess. I just can't get out of this cycle of pain at the moment. I am trying to loose weight (45 lbs. to be exact) and this pain is not helping. I guess if I just keep working on my diet it will help some. I try and walk everyday but I haven't since Wednesday. I feel like such a slacker. I have errands to do today but I would rather just lay around. Ever have one of those pain days?

R.I.P. Harriet!


This lovely lady in the center is Harriet the Galopagos Tortoise. She died on Saturday from heart failure. I am very sad about it. My husband and I have 7 tortoises of our own and wanted to go to visit Harriet one day in Australia. Unfortunately we waited too long!

Friday, June 23, 2006

Facet Injections

Well starting in a couple of weeks I am starting on a new line of treatment, facet injections. I am a little worried about it but what can I do? I am in pain and I need help. Just walking is painful.
For those who are not familiar with facet injections here is a quick description.
Thank you to www.spine.org for the information.

Lumbar Zygapophysial (Facet) Joint Injections

What are they? How are they done?
Zygapophysial joints, better known as facet or “Z” joints, are located on the back (posterior) of the spine on each side of the vertebrae where it overlaps the neighboring vertebrae. The facet joints provide stability and give the spine the ability to bend and twist. They are made up of the two surfaces of the adjacent vertebrae, which are separated by a thin layer of cartilage. The joint is surrounded by a sac-like capsule and is filled with synovial fluid (a lubricating liquid that reduces the friction between the two bone surfaces when the spine moves and also nourishes the cartilage.)

Why Get A Facet Joint Injection?
There are basically two reasons for having a facet joint injection: for diagnosis (to determine the source of pain) or for therapy (to treat an abnormality that has been detected.)
Most back pain will improve within a few weeks by itself, or with conservative treatments such as rest, antiinflammatory medications, physical therapy and exercise. If you suffer from back pain for more than six weeks and conservative treatments have not helped, or if your pain has increassed, your physician may order diagnostic tests such as magnetic resonance imaging (MRI) or computerized tomography (CT) scans to look at the structures of the spine. A problem (such as inflammation, irritation, swelling or arthritis) in the facet joint may cause low back pain. If these diagnostic tests show an abnormality in a facet joint, it may be the source of the pain.
To determine if a facet joint is truly the source of back pain, an injection (sometimes called a “block”) may be prescribed. If an injection of a small amount of anesthesia into the facet joint reduces or removes the pain, your health care provider is assured that the facet joint is the source of the pain. This is diagnostic use of the facet injection.
Once a facet joint is pinpointed as a source of pain, therapeutic injections of anesthesia and antiinflammatory medications may give pain relief for longer periods of time.

How Are The Injections Performed?
Facet joint injections are performed while you are awake, under a local anesthetic, and able to communicate. Sometimes, your health care provider may also administer drugs to make you more comfortable during the procedure. The injection is usually performed while you are lying on your stomach on an X-ray table. EKG, blood pressure cuffs and blood-oxygen monitoring devices may be hooked up prior to the injection process.
During the procedure, you probably will undergo a fluoroscopic X-ray that allows your health care provider to place the syringe in the correct facet joint. Your health care provider or an assistant will clean and sterilize the area of the back directly over the affected joint. Your health care provider will then use a local anesthetic to numb the skin over the injection site. Before your health care provider injects the actual medication into the joint capsule, he or she will inject the joint with a contrast (dye) that will show up on the X-ray to ensure he or she has the proper site for injecting the medications.
Once the proper site has been determined, your health care provider will inject the anesthetic (often lidocaine or bupivicaine) and the anti-inflammatory (usually a corticosteroid.) You may be asked whether you are experiencing pain relief or not, to make sure the injection is in the right place and determine if additional injections are needed. This process may then be repeated depending on the number of affected facet joints. Although the actual injection takes only a few minutes, the overall procedure usually takes approximately 30 to 60 minutes.

Are There Special Preparations?
If you are to undergo a facet injection, you should not take any nonsteroidal anti-inflammatory (NSAID) medications (including MotrinTM, AdvilTM, TylenolTM or FeldeneTM) for three days prior to the procedure. You should also not take any prescription pain relievers for at least four hours before the injection; check with your health care provider. On the day of the injection you should have no food or drink (including water) for at least four hours before the procedure. However, if you are an insulin dependent diabetic, inform your health care provider; you may not need to change your normal eating habits prior to the procedure. If you need to take medication within four hours before the procedure, a sip of water may be allowed; however, you should check with your health care provider prior to taking any medication before the injection.
You may be asked to remove most of your clothing for the procedure and wear a gown that opens in the back to allow access to your spine.

What Happens After The Injection?
Immediately following the procedure, you may feel a reduction or complete relief of your back pain. Your health care provider may ask you to perform a task that would normally cause pain to assess the level of pain relief. You will be able to walk immediately after the procedure, although some patients may experience leg weakness, numbness or tingling for a few hours after the injection. Because your reaction times may be affected by the medications, driving is not recommended immediately following the injection. You probably should have someone who is able to drive you home following the procedure.
Once home, you can treat any pain you may have at the injection site with ice or a pain medication prescribed by your health care provider. It is generally recommended that you take it easy and not exert yourself for the first day. After the anesthetic component of the injection wears off, your back pain may return. It may take seven to ten days for the steroid component of the injection to relieve the pain. After the first day, you can usually return to your daily activities as your pain will allow; however, you should check with your health care provider to get his or her recommendations on specific activities that will be allowed. In most cases, you can return to work the day following the injection.

How Effective Are Facet Injections?
The effectiveness of facet injections for the treatment of low back pain is controversial. No medical study has definitively identified the facet joint as the cause of low back pain. Research has found that facet injections can give relief of lower back pain for longer than six months in 18-63% of patients who underwent the procedure. It has been recommended that facet injections be used as a method to allow the patient to be able to perform other forms of conservative treatment (such as physical exercise, yoga and stretching and bending), rather than using it as a stand-alone pain treatment.
If you do not get relief from your pain following the first therapeutic facet injections, further treatments by injection are not recommended.

Who Should Not Receive Facet injections?
You should not undergo facet injections for the treatment of low back pain if your pain has not been present for at least four to six weeks and if other forms of conservative treatment have not been tried. If you are prone to excessive bleeding or are taking an anticoagulant medication (such as coumadin or heparin), this procedure is not recommended; you should notify your health care provider if you are taking these medications. If your back pain has been diagnosed as a result of an infection or malignancy, it is also recommended that other forms of pain relief be used.

Are There Side Effects?
There is a possibility of side effects with just about any medical procedure and you should always discuss that possibility with your physician before undergoing any treatment. Possible side effects from facet injections include pain at the injection site, bleeding, infection or a worsening of the pain symptoms. Side effects of the steroid medications used may include fluid retention, weight gain, elevated blood pressure, mood swings and insomnia.

The Downside of Relafen

Just this week, I was given Relafen to help with breakthrough pain for my back. I have only been taking it two days and boy have I been in another world. I am just tired and want to sleep. So far it seems like it is working for my pain, but I sure hope that this side effect goes away soon.

Thursday, June 22, 2006

The start of my brand new blog!

Well after neglecting my blog for so long....the link is no longer valid and I can no longer log in to create new entries.
So from now on I intend to be a better blogger.
For those of you not familiar with my last blog www.mychronicpain.blogspot.com , you can take a look and see wherer I was going and where I should be with this blog...somehow I got lost along the way and now I intend to be more committed to updating this daily.
So please stop by my old blog and get to know me, while I rebuild this blog and update you all on my life of chronic pain.